Shunt alert cards
A small information card stating the type of a shunt a person has and the symptoms of malfunction. Mainly for use in emergency situations. Available
through ASBAH - your local Adviser or National Centre have forms. (see overleaf for more information).
GP leaflet
A guide to hydrocephalus will be sent to your GP on request. Remember, you may be the only patient he/she has with hydrocephalus, so he/she will need all the information available.
Referral procedure
If you have not been seen by a neurosurgeon in the last 5 years and had your shunt checked, you will need to be re-referred to the hydrocephalus clinic via
your GP.
Baseline scans
Even though you are not experiencing any problems with your shunt, it is advisable that a baseline scan has been taken when you are well. This will help to determine treatment, should you develop any pressure problems, ie the consultant will know the size of your ventricles when well. If you have not had a scan in the last 5 years, you may need a referral - see referral procedures above.
Eye check
Individuals with a shunt are advised to have eye checks every 6 months. Raised intracranial pressure may cause pressure at the back of the eyes. Eye checks therefore assist early diagnosis.
Shunt Alert Cards
ASBAH has a series of Shunt Alert Cards, for adults and children. These should be carried at all times by people with hydrocephalus treated by a shunt (this will include some people with spina bifida).
The cards are available from ASBAH, Helpline & information, Telephone 0845 450 7755.
The card emphasises that, if the card-holder is showing signs similar to those which occur when there is shunt blockage or infection, urgent assessment of shunt function should be carried out in a specialist neuro-surgical unit, in order to eliminate shunt failure as a cause.
People applying for a Shunt Alert Card can also request that an information sheet about hydrocephalus, specially written for doctors, is sent to their GP.
Teachers and employers can ask for “Shunt malfunctions: a guide to symptoms and suggested actions for schools/employers”.
Link Magazine
The essential magazine for people with hydrocephalus and spina bifida.
Link is published quarterly (Winter, Spring, Summer and Autumn) and is packed with the latest news, events and issues for individuals, carers and people living with hydrocephalus and spina bifida. To subscribe contact ASBAH'S Helpline 0845 450 7755 email: helpline@asbah.org or click here.
Help us
ASBAH relies on people's generosity and support so we can help our clients who depend on us for help and advice - people with hydrocephalus, spina bifida, their families and carers. To donate click here or call 01733 421327
This information has been produced by ASBAH’s medical advisers and approved by ASBAH’s Medical Advisory Committee of senior medical professionals.
