At ASBAH we’re always looking for people to share their experiences to help us in our work promoting awareness of spina bifida and hydrocephalus.
Your experiences of these conditions can be put together as case studies which we can use in a variety of ways.
They can be put out to the media when we’re looking to publicise new initiatives or could be used on leaflets or in Link magazine as real life experiences to back up medical articles.
If you are willing, we may also ask you to speak to a journalist on certain issues you feel strongly about.
We do have a number of people who are willing to help, but as always, we’re looking for more volunteers.
You could write your story and send or email it to us. Of course you will be able to see the finished article and have chance to change anything you aren’t happy with.
We always respect your right to privacy and will always check with you before passing your information on to a journalist… and we’ll never put any pressure on you to do an interview. You and you family will always come first.
If you can help, please email Shelly Bullard, Marketing & Communications Officer at shellyb@asbah.org
