ASBAH has a gathered a number of case studies from a wide range of people with Hydrocephalus.
Aaron Gill – The Teenage Years
Read about Aaron Gill’s view on life with Hydrocephalus and read his parents point of view as well.
Anna Thomson – Sport for All
Anna Thomson talks about her experiences of taking part in sport and joining a local gym.
Ben Edwards - Going to University
Ben, who has Hydrocephalus, talks about the three years he spent studying law at Exeter University
Brandon Conley – Sporting Success
Brandon has Spina Bifida and Hydrocephalus but has recently taken part in the National Junior Athletics championships in Blackpool and is a keen fan of table cricket.
Emma Tucker - Endoscopic Third Ventriculostomy
Emma Tucker underwent an endoscopic third ventriculostomy (ETV) when she was six months old. Her mother Sue talks openly about the experience.
James Bunce - Dandy Walker Syndrome
Paul Bunce and his wife Christine have 17 years experience of living with Dandy Walker Syndrome. They discovered that their son James, now 17, had the condition during a scan, 37 weeks into the pregnancy. Here Christine talks about Dandy Walker and how it has affected James.
Jennifer's Story - Transition
21 year old Jennifer* from the North West who has hydrocephalus and Cranium Bifida (a failure of the development of the bones in the skull) talks about her experiences of transition.
Lisa Nicholls Sykes
Lisa and husband Nigel have first hand experience of the tough times parents of a disabled child can face because their son Barney, now 7, was diagnosed with hydrocephalus at eight weeks old.
Liz Potts - Endoscopic Third Ventriculostomy
Liz, who has Spina Bifida, talks about the reasons for the operation and her health since then.
Nick Manning - Ageing with Hydrocephalus
Nick Manning talks about his experiences of ageing with Hydrocephalus.
Vicky Rose
EXTRA personal story from Link Issue 225
Vicky, 29, has hydrocephalus and has problems with short-term memory, balance and co-ordination of her hands. Here she talks about her experiences of moving into her own home
Wendy Simons - Normal Pressure Hydrocephalus
Wendy Simons was diagnosed with normal pressure hydrocephalus (NPH) in 2001. She suffered severe symptoms for several months before NPH was finally diagnosed and she was fitted with a shunt.
