Useful Links
ASBAH does not endorse any of the sites listed below or give any guarantee that information contained upon them is correct. If you wish to have a link to your site included here please send the URL to:
email: helpline@asbah.org
Spina Bifida and Hydrocephalus
Arbeitsgemeinschaft Spina Bifida und Hydrocephalus For information in German.
Australian Spina Bifida and HydrocephalusAssociation - a new website for Spina Bifida Awareness Week in Australia
BOSK Gives information in Dutch
The Continence Foundation Advice on continence issues
The Danish Spina Bifida and Hydrocephalus Assocation (Danish name: Rygmarvsbrokforeningen af 1988)
ERIC Continence advice for children up to 16
The Hydrocephalus Foundation Aims to contribute emotional support to people with Hydrocephalus and their family
Headway provides information on all aspects of brain injury
IIH Website A website with information on Ideopathic Intracranial Hypertension. Has leaflets and information and also a users forum
Incywincy Swim nappies for babies, children and adults
Information in Polish about hydrocephalus and spina bifida
International Federation for Hydrocephalus and Spina Bifida Home page of the International Federation for Hydrocephalus and Spina Bifida
The Irish Association for Spina Bifida and Hydrocephalus Home page of the Irish Association for Spina Bifida and Hydrocephalus
Pregnancy and Maternal Hydrocephalus Database
Queensland Association for People with Spina Bifida or Hydrocephalus
Scottish Spina Bifida Association Home page of the Scottish Spina Bifida Association
Spina Bifida Association of America Home page of the Spina Bifida Association of America
Spina Bifida and Hydrocephalus Association of Canada Home page of the Spina Bifida and Hydrocephalus Association of Canada
The Spina Bifida and Hydrocephalus Association of Northern Alberta
Spina Bifida and Hydrocephalus Association of Ontario
The Spina Bifida Association of Quebec
The Spina Bifida and Hydrocephalus Assocation of South Australia
Spina Bifida Social Centre This group has been created for people with Spina Bifida, or friends or relatives of people with SB to meet and have fun and regular chats
The Hydrocephalus Support Association who are in NSW Australia can be emailed on: triplej@accsoft.com.au
Disability - General
A consortium of disablement charitiesA medical encyclopaedia
A resource site for teachers of children with special educational needs
Ability - lots of links
Accessible Vacation Home Exchange - a free service by the Institute on Independent LivingAdapt-IT supply computer aids for people with disabilities
Advice Guide is a site run by the Citizens Advice Bureau giving information on a range of subjects including the Disability Discrimination Act
BEMA>D acts as a bridge between the Statutory Services and The Disabled Black and Ethnic Minority in the community
British Wheelchair Sports Information about wheelchair sports in Great Britain
Birtenshaw Hall School is a day and residential, non-maintained special school for pupils/students aged 3-19 years
Canine Partners assists disabled people to enjoy greater independence and a better quality of life through the help of specially trained dogs
Children's Health Information Centre - Queen's Medical Centre, Nottingham. Information about the Queen's Medical Centre and a wide range of parent information leaflets
Contact a family provides support to parents / carers of children with disabilities and also helps parents contact other families who have similar / same conditions
Cyclone provide lightweight and sports wheelchairs, standing chairs, therapy equipment and hand cycles
Dis-ability.info is an online resource for disabled people
Disability Alliance produce the disability rights handbook and are the authority on social security benefits for disabled people
Disability Central a site for teenagers
Disabled Holiday Directory for holidays in the UK and abroad
Disability Jobsite assists people with a disability to participate actively in employment. Our services play a critical role in assisting disabled people on the pathway to work
Disability Now the UK's most comprehensive archive of disability information
Disabled Parents Network National Organisation for disabled people who are parents or hope to become parents
The Disability Rights Commission (DRC) is an independent body set up by the Government to help eliminate discrimination against disabled people and to promote equality of opportunity. The site contains a significant amount of campaign and resource information
DisabilityWorld A lot of information about disability sites
Disability related web sites
Disabledunited.com Included on the site is a unique Friends and Dating facility, chat room and message forums
Discovery Trekking Outfitters - manufacture a variety of special needs products including a swimming undergarment for those with bowel incontinence
emPowernet A large database of information about disability issues and campaigns
eMedical A general medical information site
EntitledTo helps you ascertain online which benefits you may be able to claim
The essp parents' library for deaf children.
Family Fund A fund available for children under 16 with a severe condition who meet the income and residency criteria. Funding given for holidays, driving lessons for carers etc
Greater London Action on Disability (GLAD) is a pan-London organisation which campaigns for the rights of disabled Londoners and provides advice, information and training
Healthlinkusa Information on a wide range of health links
HemiHelp.org.uk A UK based charity for children and young people with hemiplegia and their families
Holiday Care gives advice and help with the organisation of holidays for people with disabilities
Information on health and social services for the residents of the London Borough of Wandsworth
Institute on Independent Living
Jubilee Sailing Trust a charity that aims to promote the integration of able-bodied and disabled people through the adventure of tall ship sailing
Kennedy Krieger Institute is an internationally recognized facility dedicated to improving the lives of children and adolescents with pediatric developmental disabilities through patient care, special education, research, and professional training
Keytools - supply specialist computer equipment for people with a large range of disabilities
Kids Days Out Days out for children with details of wheelchair access
Kids Out provides fun and happiness for disadvantaged children. Funding for holidays, carers, respite, play equipment etc
Kingston Special Needs Project aims to foster a greater understanding of the requirements of children with Special Needs
LearnerStuff - a site giving free access to driving theory practice test and advice to disabled drivers
Leonard Chesire provides support to disabled people. The largest voluntary sector provider for care and support for disabled people. Provides respite, residential care and help at home
Motability A national charity that may be able to offer financial assistance towards the cost of a suitable car, adaptations, driving lessons or a wheelchair accessible vehicle. Also offers help with obtaining powered wheelchair and scooters
The Neurological Alliance brings together over 60 charities working to make life better for people with a neurological condition
Outsiders For people who feel isolated because of social or physical disabilities
Parents Power are a support organisation for disabled parents and their families in Bexley
PHAB Physically handicapped and able bodied group encouraging children to come together in regional clubs for for holidays
Promedics Supplier of all kinds of disability aids
Racketys Special Clothing for Special Children
RADAR (Royal Association for Disability and Rehabilitation)
Reachout Magazine - A meeting place for people with disabilities (includes a live chat area)
Self Help and Support Groups A guide to groups in the UK and overseas
The Shaw Trust Charity to help disabled people access the work place
Skill National Bureau for Students with Disabilities promotes equality of opportunity for disabled people in post 16 education, training and employment
Tethered Cord Resources: A Personal Story, a UK Resource
Treloar's provides education, independence training, therapy and opportunities for over 300 physically disabled young people from all over the UK
U Can Do I.T. - Wigram Aid to Ability for Critically-disabled Internet Students. WAACIS is a Charity that helps disabled people by providing computer training on how to use the Internet in their own homes at an affordable cost
UK Self Help Groups - A wide ranging directory giving telephone numbers and web addresses
Vips-in-SEN features a mix of comprehensive information to help parents and has a campaigning edge for improving provision in special educational needs
Vitalise - a national charity offering breaks for disabled people and carers
The website of the British Epilepsy Association.
Wheelchair Children run group and individual wheelchair-skills events training for manual and powered wheelchair users
Whizz-Kidz is a national charity that provides customised mobility equipment to disabled children and young people to increase their independence and improve the quality of life for them and their families
www.medicdirect.co.uk A free, interactive website which provides a complete health information resource for both consumers and medical practitioners
www.hemihelp.org.uk Provides information to children with hemiplegia and their families
Other Links
ARC Helpline giving support in making decisions during antenatal testing as to whether to continue with the pregnancy
Babyloss is a UK resource for anyone who has been touched by the loss of a baby, at any stage during pregnancy, or just after birth
The Baby Registry UK parenting and pregnancy site
Birth Centre website has been developed as a tool for health professionals, women who are considering pregnancy or who are already pregnant and seeking evidence based advice on health and birth options, and journalists working in the health sector
Bullying Online helps parents and pupils deal with school bullying
Care Confidential Pregnancy and post abortion helpline. Advice in planning or unplanned pregnancy, abortion or baby loss
Connexions A young persons service which provides information, advice, guidance and support
Glaxo Neurological Centre
Manual Handling Solutions promoting awareness of new products specifically designed around people with disabilities
Midwives Information and Resource Service (MIDIRS) is an educational charity set up in 1985, providing information and practical resources to maternity healthcare professionals. Its mission is to be the leading internation information resource relating to childbirth and infancy, disseminating this information as widely as possible to assist in the improvement of maternity care.
National Council for Voluntary Organisations
Parents with Disabilities Online Lots of useful links, information and Parents-Chat listserver
Relate offers advice, relationship counselling, sex therapy workshops, mediation and support
www.forparentsbyparents.com looks at all the life changing elements of parenthood, even the grim bits!! Through the sharing of personal experiences, parents offer support, reassurance, information, ideas and practical solutions
Home Pages of People with Spina Bifida and/or Hydrocephalus and Their Families
Joe's website
Ryans Page - Ryan was born at 23 weeks with hydrocephalus
The SB Center Message Boards
Simon Allanach's home pages Simon's interests and information about hydrocephalus
Shannon Russell's home pages
Spina Bifida Central A chat room, message board and links
Tim's website with information about hydrocephalus and oesophageal atresi in English, Finnish and Swedish