What our service users think!

“As a parent I have called ASBAH many times when I needed help, information and support. They are the only people I have found that have been able to offer specific advice. ASBAH is just brilliant!”
Sue Tucker from Huntingdon, whose three-year-old daughter, Emma, has hydrocephalus.

“Not only would the Helpline provide an all round information and back-up support for us but also will be an invaluable resource for Oscar’s care team, friends and other family members.”
Tamsin Olney from Leighton Bromswold, whose son, Oscar, aged 2, has hydrocephalus.

“The Helpline is great news for service users like me and compliments the services provided already by ASBAH. Moreover, it will offer me and my friends, family and care workers an opportunity in which to share issues about spina bifida and hydrocephalus anonymously. Being able to speak to someone direct is reassuring and offers a feeling of comfort.”
Jason Merrill

“ASBAH has made what would have been a bleak world for Beth so much more exciting. It has opened doors that we would never have known were there.
“The support we have received from ASBAH and other families has been fantastic.
“I urge people to support the Helpline and Information Service to make it easier for other people to access the help they need.”
Sam Copeland, mother of Beth, 11 months old

“ASBAH's Helpline offers yet another string to ASBAH's bow - opening up a further channel of communication for potential service users. The hope is that the Helpline will reach more adults with spina bifida and or hydrocephalus.”
Paul Zickel, Chair, ASBAH's Your Voice steering group

“We wish ASBAH's Helpline Appeal every success as we are confident it will enhance and add an extra dimension to the already high standards of service we have experienced from the ASBAH Service network.”
Lisa Cain, Chair, ASBAH Disabled Users Advisory Committee (DUAC)

“We would definitely not have got through the last nine and a half years with out the advice, help and support we received from ASBAH.
I hope many people support the Helpline and Information Service Appeal so ASBAH can continue to help families.”
Helen Hassall, mother of Karl, 9

“When Wendy came out of hospital we had no one to turn to for help and advice on normal pressure hydrocephalus, but she still had symptoms that needed explaining. An ASBAH helpline is the best thing that could happen and will be such a relief to many people.”
Bob Simon