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• Recruitment
  • Current Openings
    • Office Administrator
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• News
  • Latest Releases
    • November 2007 - Below the Belt hits the right spot
    • UK Flour to be fortified with Folic Acid
    • Life saving Folic Acid Recommendation welcomed
    • Adopting Folic Acid Recommendation will save over 300 lives a year
    • Folic Acid Recommendation will save over 300 lives a year
    • Leicester Mother Praises Hydrocephalus and Spina Bifida Helpline Launch
    • Footballer Danny Mills praises new Helpline
      • Helpline celebrates first birthday
        • The outputs and outcomes of ASBAH’s Helpline and Information Service
          • Feedback Questionnaire
        • Feedback Questionnaire
        • Helpline appeal background...
        • What our service users think!
    • Monday –The Charities Lottery funds ASBAH Family weekend
    • Skegness Couple Take Part in Filming to Raise Awareness of Normal Pressure Hydrocephalus
    • ASBAH strikes lucky in lottery
    • Fortification campaign moves a step closer to victory
    • ASBAH set to raise up to £2m with monday – the Charities Lottery
    • Helpline ready for take off thanks to Big Lottery funding
    • End of means testing for children with disabilities
    • Largest US survey shows folic acid fortification is safe.
    • 1400 pregnancies in the UK are affected by Neural Tube Defects, Scientific Symposium on Folic Acid reveals.
    • Danny raises funds with Touchstone
    • Adding folic acid to food is the most successful way of reducing neural tube defects, a new report suggests.
    • Comic Relief boost for Your Voice
    • Call to abolish means testing for Disabled Facilities Grant
    • New adviser for Northampton
    • Awareness Days voted a hit
    • Pigeon Power
  • Events
• Accessibility
  • Accessibility
• Site Search
• Have Your Say!
  • Thousands speak out against Government Proposals
  • RESEARCH STUDY SEEKS VOLUNTEERS
  • Fighting for a Legal Right to Short Break Care for Families with Disabled Children
• Your Voice Website
• Listen Up!
• Positive About Disabled People
• About ASBAH
  • What we do
    • Social Model of Disability
  • Aims and Mission
    • Social Model of Disability
  • Who's Who
  • From the Chairman...
    • ASBAH'S Education Policy
    • Social Model of Disability
  • Annual Report and Accounts
  • Quality Standards
    • Social Model of Disability
• Folic Acid
  • Life saving Folic Acid Recommendation welcomed
    • 11th December 2006 - Folic Acid Recommendation will save lives
    • 17th May 2007 - Life saving Folic Acid Recommendation welcomed.
  • About Folic Acid
    • Tell your story
    • 27th April 2006 - Fortification campaign moves a step closer to victory
    • May 05 - 1400 pregnancies in the UK are affected by Neural Tube Defects, Scientific Symposium on Fol
  • What is ASBAH doing?
    • Tell your story
    • May 05 - 1400 pregnancies in the UK are affected by Neural Tube Defects, Scientific Symposium on Fol
  • Folic Acid Action
    • Tell your story
    • May 05 - 1400 pregnancies in the UK are affected by Neural Tube Defects, Scientific Symposium on Fol
    • Hydrocephalus Action campaign
  • Can folic acid help prevent spina bifida?
    • Tell your story
    • May 05 - 1400 pregnancies in the UK are affected by Neural Tube Defects, Scientific Symposium on Fol
• Fundraising
  • Fundraising
  • Sponsor A Balloon
  • Advertise In Our Publication
  • Your Area Representatives
  • Research
    • Research Introduction
  • Events
    • Skyline overseas events - fundraising adventures
    • Benny Bear Tea Party
    • Sponsored runs
      • The ASBAH 'A' Team
    • Megacycle
    • Sponsored silences
    • Sponsored Walks
    • Dance Night
    • Quiz Night
    • justgiving.com
  • At work
    • Staff Fundraising
    • Corporate Sponsorship
    • Payroll Giving
    • Charity of the Year
  • At School
  • Forget-me-not funds to keep their memory alive
  • Fundraising
  • Annual Report and Accounts
  • Pigeon power gives ASBAH a flying start
  • New Race for Runners
  • The ASBAH A Team
  • Jaynie Philips races ahead
• Hydrocephalus
  • What is Hydrocephalus?
    • Tell your story
    • Meet the experts - Helen Fernandes
  • The causes of Hydrocephalus
    • Tell your story
    • Management of Hydrocephalus Flowchart
  • Effects of Hydrocephalus
    • A personal view of what hydrocephalus means to a young person
    • Unwanted Adjustment
    • Tell your story
    • Management of Hydrocephalus flowchart
  • Treatment of Hydrocephalus?
    • Tell your story
    • Hydrocephalus Management flowchart
  • Complications that may arise with a hydrocephalus shunt
    • Tell your story
    • Hydrocephalus Management flowchart
  • ETV an alternative treatment for hydrocephalus
    • Liz Potts Endoscopic Third Ventriculostomy
      • Tell your story
    • Emma Tucker's Endoscopic Third Ventriculostomy
      • Tell your story
    • Tell your story
    • Hydrocephalus Management flowchart
  • What is Normal Pressure Hydrocephalus?
    • Bart Bainbridge
      • Tell your story
    • Every day was Sunday - Wendy Simons
      • Tell your story
    • Tell your story
    • Normal Pressure Hydrocephalus CD ROM
    • Hydrocephalus Management flowchart
  • Normal Pressure Hydrocephalus research
    • Research Introduction
    • Tell your story
    • Hydrocephalus Management flowchart
  • Living with Hydrocephalus
    • Unwanted Adjustment
    • Enjoying sport
    • It's not a problem…one teenager's view on life with hydrocephalus
      • Tell your story
    • Codman race to help save Aqueela's life.
      • Tell your story
    • Ageing with Spina Bifida and Hydrocephalus ...how you can help yourself
    • Bart Bainbridge
      • Tell your story
    • Emma Tucker's Endoscopic Third Ventriculostomy
      • Tell your story
    • Going to University
      • Disabled students get new rights
    • Dandy Walker Syndrome
      • Tell your story
    • Liz Potts Endoscopic Third Ventriculostomy
      • Tell your story
    • Matthew Carnelley
      • Tell your story
    • Helen Fernandes
      • Tell your story
    • More info on independent living
      • Independent Living Pack
      • Disabled students get new rights
      • Tell your story
    • The National Service Framework for Long-term Conditions - by Andrew Russell
    • Every day was Sunday - Wendy Simons
      • Tell your story
    • Sport for all
      • Enjoying sport
    • Tell your story
• Hydrocephalus Action
  • Hydrocephalus Action campaign
    • Management of Hydrocephalus Flowchart
  • Hydrocephalus and Children
    • Benny's Team Wins
      • Order Now
    • Benny Gets Better
      • Order Now
    • Benny Bear Goes to School
      • Order Now
    • Benny Goes on Holiday
      • Order Now
    • Benny Bear Posters
      • Order Now
    • Benny's New Shunt
      • Order Now
  • Hydrocephalus and Adults
    • Normal Pressure Hydrocephalus research
      • Research Introduction
      • Tell your story
      • Hydrocephalus Management flowchart
    • Living with Hydrocephalus
      • Unwanted Adjustment
      • Enjoying sport
      • It's not a problem…one teenager's view on life with hydrocephalus
        • Tell your story
      • Codman race to help save Aqueela's life.
        • Tell your story
      • Ageing with Spina Bifida and Hydrocephalus ...how you can help yourself
      • Bart Bainbridge
        • Tell your story
      • Emma Tucker's Endoscopic Third Ventriculostomy
        • Tell your story
      • Going to University
        • Disabled students get new rights
      • Dandy Walker Syndrome
        • Tell your story
      • Liz Potts Endoscopic Third Ventriculostomy
        • Tell your story
      • Matthew Carnelley
        • Tell your story
      • Helen Fernandes
        • Tell your story
      • More info on independent living
        • Independent Living Pack
        • Disabled students get new rights
        • Tell your story
      • The National Service Framework for Long-term Conditions - by Andrew Russell
      • Every day was Sunday - Wendy Simons
        • Tell your story
      • Sport for all
        • Enjoying sport
      • Tell your story
  • Who is Codman, shunt manufacturer
  • UK registry monitoring the use of shunts
  • Awareness Days voted a hit
• Information
  • Information Sheets
    • ASBAH Home Page
  • Hydrocephalus Information
    • What is Hydrocephalus?
      • Link Magazine
      • Hydrocephalus Action campaign
      • Feedback Questionnaire
    • Behaviour
      • Feedback Questionnaire
    • Endoscopic Third Ventriculostomy
      • Link Magazine
      • Hydrocephalus Action campaign
      • Feedback Questionnaire
    • Hydrocephalus – information for parents
      • Link Magazine
      • Feedback Questionnaire
    • Management of Hydrocephalus
      • Link Magazine
      • Hydrocephalus Action campaign
      • Feedback Questionnaire
    • Intracranial Hypertension
      • Link Magazine
      • Hydrocephalus Action campaign
      • Feedback Questionnaire
    • Normal pressure hydrocephalus
      • Link Magazine
      • Hydrocephalus Action campaign
      • Feedback Questionnaire
    • Request for Hydrocephalus Shunt Alert Card and GP Leaflet
      • Link Magazine
      • Feedback Questionnaire
    • Shunt Malfunction For Employers
      • Link Magazine
      • Feedback Questionnaire
    • Shunt Malfunction for Schools
      • Link Magazine
      • Feedback Questionnaire
  • Spina Bifida Information
    • What is Spina Bifida?
      • Link Magazine
      • What is Spina Bifida?
      • Feedback Questionnaire
    • Anencephaly - Information for parents after diagnosis
      • Link Magazine
      • Feedback Questionnaire
    • Continence Issues for Adults with Spina Bifida
      • Link Magazine
      • Feedback Questionnaire
    • Continence Management
      • Link Magazine
      • Feedback Questionnaire
    • Continence and You
      • Feedback Questionnaire
    • How to Avoid Pressure Sores
      • Link Magazine
      • Feedback Questionnaire
    • Sex and Spina Bifida - A leaflet for men
      • Link Magazine
      • Feedback Questionnaire
    • Sex and Spina Bifida - A leaflet for women
      • Link Magazine
      • Feedback Questionnaire
    • Vaccinations and Spina Bifida
      • Link Magazine
      • Feedback Questionnaire
    • Spina Bifida Occulta
      • Link Magazine
      • Feedback Questionnaire
  • Lifestyle Information Sheets
    • Driving
      • Link Magazine
      • Feedback Questionnaire
    • Folic Acid and the Prevention of Spina Bifida and other Neural Tube Defects
      • Link Magazine
      • Feedback Questionnaire
    • Sex: Questions you may ask
      • Link Magazine
      • Feedback Questionnaire
    • Depression and Disability
      • Link Magazine
      • Feedback Questionnaire
    • Young Peoples Leaflets
      • Feedback Questionnaire
  • Education Information Sheets
    • Link Education
      • Communication with Schools
        • CASE STUDY: Sharon Hodgson 'Communication'
        • CASE STUDY: Sharon Hodgson 'Communication'
      • Disability Rights for Pre-School Children
      • CASE STUDY - Going to University
      • How Statementing is Changing
        • CASE STUDY: Christine Milton 'Statementing'
        • CASE STUDY: Christine Milton 'Statementing'
      • Managing Bowel and Bladder needs in schools and in the Early Years
      • Person Centred Planning in Year 9 for students with a Statement of Educational Needs
      • School Transport
      • Visiting Schools
        • CASE STUDY: Joy Clarke-Roberts 'School Visit'
        • CASE STUDY: Joy Clarke-Roberts 'School Visit'
      • The Disability Equality Duty
    • Developing Skills Through Toys
      • Link Magazine
      • Feedback Questionnaire
    • Going to College or University with Intracranial Hypertension
      • Link Magazine
      • Hydrocephalus Action campaign
      • Feedback Questionnaire
    • Intracranial Hypertension and the child at school
      • Link Magazine
      • Hydrocephalus Action campaign
      • Feedback Questionnaire
    • Information about Pre-school Children with hydrocephalus and/or spina bifida
      • Link Magazine
      • Hydrocephalus Action campaign
      • Feedback Questionnaire
    • Supporting Children with Special Educational needs in School
      • Link Magazine
      • Feedback Questionnaire
  • Archives
    • Pregnancy Supplement
      • Spina Bifida and Hydrocephalus and Pregnancy
      • New Information Guide for Midwives
      • Europe - A new battle begins
      • ASBAH speaks out over fortification delays
      • Case Study - Val's Story
      • Case Study - Linda Nicholls Sykes story
      • Coping with the news your baby has a disability
    • Ageing special
      • What is osteoporosis?
      • What is arthritis?
      • The ageing bladder
      • Benefits for different ages
      • Eat well - age well
      • Fit for anything
      • Cheryl Wilton: Ageing with spina bifida
      • Nick Manning: Ageing with hydrocephalus
    • Going To Work
    • Helpline Appeal
      • Helpline celebrates first birthday
        • The outputs and outcomes of ASBAH’s Helpline and Information Service
          • Feedback Questionnaire
        • Feedback Questionnaire
        • Helpline appeal background...
        • What our service users think!
      • Meet Linda, the Helpline Manager
        • Meet the Helpline operators
      • The outputs and outcomes of ASBAH’s Helpline and Information Service
        • Feedback Questionnaire
      • Helpline Feedback Questionnaire
      • Jeffrey Tate Link
• Local Associations
  • New Support Pledged for Local Associations
  • Where is your nearest local association
    • England
      • Bristol and District Local Association
      • Leicester Local Association
      • Somerset Local Association
    • Northern Ireland
    • Wales
      • North Wales
  • Connect Bulletin
  • News
    • Bolton and Bury Local Association
    • North Wales Local Association
    • Sheffield Association - 40 years on
• Publications
  • List of ASBAH Publications
    • ASBAH’s independent living pack – tried and tested
    • Hydrocephalus and Children
      • Benny's Team Wins
        • Order Now
      • Benny Gets Better
        • Order Now
      • Benny Bear Goes to School
        • Order Now
      • Benny Goes on Holiday
        • Order Now
      • Benny Bear Posters
        • Order Now
      • Benny's New Shunt
        • Order Now
    • Link Magazine
    • Your Child and Hydrocephalus
      • Tell your story
  • ASBAH’s independent living pack – tried and tested
  • Order Now
• Research
  • Research Introduction
  • A Constant Fight- The need for accessible and coordinated services for children and adults with hydrocephalus and/or spina bifida
  • ASBAH’s research commitment
  • Current funding opportunities for ASBAH Research
    • Research project stalled by funding withdrawl
    • Volunteers needed for new research study
  • ASBAH past and current sponsored Research projects
• Spina Bifida
  • What is spina bifida?
    • Tell your story
  • Latex Allergy
    • Tell your story
  • Anti epilepsy drugs increase risk of spina bifida and other neural tube defects
    • Tell your story
  • Sensible eating for long term weight loss
    • Tell your story
    • Healthy eating - Phillip Rogers
  • Disabled Users Group, Your Voice
    • Join Your Voice and have your say
    • Sport for all in Wales
    • ASBAH Service User's Your Voice Weekend - a review by Bonnie Harris
    • Fun in Brum
    • Know your shunt
    • Tell your story
    • Get Your Voice Heard Online
  • Continence
    • Tell your story
    • Meet Millie & Russell
  • Living with Spina Bifida / Case Studies
    • Graham Webb MBE
    • Blaine Harrison – lead singer of the Mystery Jets
    • Ageing with Spina Bifida and Hydrocephalus ...how you can help yourself
    • Chiari malformation
    • Disabled students get new rights
      • Going to University
    • Forging the way to independence
      • Disabled students get new rights
    • Going to University
      • Disabled students get new rights
    • Healthy eating - Phillip Rogers
    • Jet setting Warren Tofts
    • More info on independent living
      • Independent Living Pack
      • Disabled students get new rights
      • Tell your story
    • National Star College
      • Bryan Stevens
      • Mark Turner
    • Qasim Pervase’s spina bifida and Hydrocephalus
    • Sam Copeland prepares for her new baby
      • Welcome to the world baby Elisabeth
      • Bottom Links
    • Siobhan Corr's diary
      • Siobhan Corr's diary - Weeks 20-40
      • Bottom Links
        • Siobhan Corr's diary - Weeks 20-40
    • The National Service Framework for Long-term Conditions - by Andrew Russell
    • Days in the life of...Daryl Beeton
    • Sport for all
      • Enjoying sport
    • Tell your story
  • Tell your story
• Useful Links
  • Useful Links